Report By: Ishmael Barfi
Ghanaians have been called upon to celebrate the dignity and the numerous contributions of persons with albinism as they collectively work towards a more inclusive and equitable society where no one is left behind.
According to the Ghana Association of Persons with Albinism (GAPA), “Together we can build a Ghana where persons with albinism are empowered to reach their full potential and live with dignity, free from discrimination and fear”.
In a press statement issued by the Association, they join the international community today, 13th June 2024 to celebrate a decade of progress and collective action to promote the rights and welfare of persons with albinism and their family members.
This year’s International Albinism Awareness Day under the theme: “10 years of IAAD: A decade of collective progress is observed yearly across the globe including Ghana.
Since its adoption by the United Nations (UN) General Assembly in 2014, International Albinism Awareness Day has become a powerful platform to raise global awareness about the unique challenges faced by persons with albinism and to advocate for their full inclusion and participation in society.
The statement indicated that, over the past 10 years, GAPA has played a key role in driving positive change for the albinism community in Ghana.
“The Association has used the International Albinism Awareness Day as a platform to raise awareness and increase understanding on albinism as a disability, and participation of persons with albinism in society at all levels”, it noted.
However, despite this progress, the statement revealed that persons with albinism in Ghana and across Africa continue to face grave threats to their safety and well-being.
The statement stressed that harmful practices including physical attacks for ritual purposes, discrimination, social stigma, and limited economic opportunities remain persistent challenges that require sustained action and commitment from all stakeholders.
Albinism is more prevalent in Africa than in other parts of the world. According to a 2019 research study, albinism’s prevalence in Africa is between one in 5,000 to one in 15,000.
Genetically, Africans are more prone to albinism. The phenotype of sandy-colored hair, chalky white skin, and blue or hazel eyes is very distinctive in African populations.
High OCA2 frequencies are seen among various African tribes, with Tanzania having one of the world’s highest rates of albinism.
Therefore albinism is a complex issue in Africa, affecting both the physical health of individuals and their social well-being. Efforts to raise awareness, combat superstitions, and promote inclusivity are crucial to supporting people with albinism.
Source: www.thenewindependentonline.com
